There has been a lot of confusion lately surrounding my blood and what to do about it. I had a blood clot ten years ago and discovered that I have a genetic disorder that makes my blood clot easier. Through lots of tests and hospital stays it was determined that it was the genetic disorder combined with a rib pressing on my vein that ultimately caused the clot. So they removed part of the rib and sent me on my way.
In the past ten years I have never needed to be on blood thinners or have my blood tested periodically because they believed that it was the rib that really caused everything to happen. Now that I am pregnant though it has been a whole different story. Pregnancy in general puts everyone at a higher risk of clotting because of all the added hormones but it puts me at a higher risk because I have a genetic disorder and an even higher risk because I have actually had a blood clot before (a lot of people have the disorder I have and never have a blood clot).
The confusion started when the midwife I am seeing requested the notes of all the testing I had done ten years ago; apparently my primary office sent over some of the notes but not all of them. When she got them she discovered that I had also tested positive for
another blood clotting disorder, in addition to the one I already knew I had. She sent these test results to my perinatologist who called me and told me that he wanted to have these same tests done again since it was so long ago and have me see a hematologist because if I was still testing positive for this second disorder then we would need to re-evaluate my plan. My plan was that I had started taking blood thinning injections since December 2011 as a precaution against another blood clot, but if this test came back positive we might need to add something else to the plan and it would make my postpartum care a lot more complicated.
Yesterday we went to the hematologist's office to get the results of the tests. All the tests came back negative, which is great and I guess that the second disorder is one that can fluctuate so it isn't unheard of that someone can test positive at one time and negative at another.
Then the hematologist told me that he doesn't think I need to be on the blood thinning injections
at all. This is where I got confused because he said that he believes the real reason I had the clot to begin with is because of that pesky rib and since the rib had been removed I should be in the clear. I was hesitant because my perinatologist told me he was prescribing the injections because of the fact that I had a clot ten years ago and that in itself puts me at higher risk of having another one.
Today we went to the perinatologist's office to find out what was going on. He said that he had been reading a lot about it and he talked with the hematologist on the phone and overall he wasn't sure what to recommend to me. He said if I tell you to go off the blood thinners and you do and you get a clot I've failed you and if you stay on them and you bleed too much after delivery I've failed you. The risk of me getting a blood clot is much higher though than bleeding too much after delivery. So he told us to go home and think about it and he gave us a study to read about it. I think that for now I am going to stay on the blood thinners because I'd rather be safe than sorry. Another factor in all this though is the cost; the injections without insurance cost close to $800 a month. Luckily the most we've had to pay is $350 and it has gone down from there but at the end of this month our insurance is going to change because Cargill is only paying for Cobra for us through April.
It's all just a super confusing situation and on top of all that we are dealing with Eric being offered a job and then having the company take their offer back and planning my sister's wedding for the end of May. So all in all we have been pretty stressed out. Oh yeah, and we just finished moving into our new apartment! It has been a crazy couple of weeks! Here is a picture though:
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| 22 weeks! |
I will keep you updated on what we decide to do and if you have any advice we'd love to hear it!
Also prayers for our health and sanity would be appreciated :)
xoxo, Paula